Genetic counselling has emerged as a key profession with the advent of widespread genetic testing and is the key vehicle through which information is transmitted to prospective parents when a disability related trait is identified. This proposed 4 year study, in partnership with the Canadian Association for Community Living, the Canadian Association of Genetic Counsellors and others, seeks to address gaps in our knowledge, curriculum and information through a two pronged multi-phased study which develops, tests and evaluates both the content and delivery of: 1) disability related information provided to prospective parents and 2) disability curriculum for use in genetic counselling and other relevant health care education programmes.
Investigators: Tim Stainton, Catriona Hippman, Jehannine Austin, Jenna Scott, Rachelle Hole
Research Team: Michael Bach, Sarah Predham